In-Home Dementia Care Guide

Fundamentals for tackling one of life’s biggest challenges

Having a loved one with dementia can be a life-changing experience for everyone involved, but exercising proper care can provide a treasure trove of small victories and an improved living experience for the patient.

Small actions make a big difference in early dementia care and can help foster a better long-term experience for patients undergoing in-home treatment for dementia.

Common Questions

Dementia

What is dementia? Why is it challenging to care for?

First, we know that dementia is not a specific disease but rather a condition characterized by a group of symptoms that result in the impairment of brain functions like memory and judgment.

With a wide range of symptoms that include forgetfulness, impaired thinking, and faltering social skills, dementia has become an increasingly common and difficult condition to manage. Even though some root causes of dementia can be reversed, most issues come from more specific diseases like Alzheimer’s with an extremely limited range of treatment and no discovered cure

Even with a limited range of treatment options, dementia care can still have a long list of little victories.

Cognitive medication and self-care treatments can go a long way to preserve you and your loved one’s way of life for years to come. Studies show that moving treatment into the home can help create a safe and familiar environment, greatly improving the patient’s safety and independence.

dementia-care

What are the best ways to care for dementia patients?

A wide range of conditions affecting seniors can make them more prone to falls.

For example, movement and balance issues make any terrain more difficult and create a greater risk of falling no matter the age. Additionally, sensory factors such as problems with eyesight, hearing, or touch can harm a senior’s ability to properly perceive and interact with the environment around them.

This decrease in spatial awareness can easily lead to opportunities for falls to occur.

dementia at home

How can I treat dementia at home?

Providing in-home care for your loved one can take several different forms, and as symptoms grow more complex, the care process can become much more involved.

In the early stages of treatment, in-home care will usually consist of basic assistance for daily tasks and chores, like cleaning, cooking, or going to the grocery store. To help increase independence for the senior at this stage, it may also be good to start setting up the in-home environment for success and safety.

Simple steps like straightening up and removing hazards can help prevent in-home falls. Engaging in stimulating activities and spending time talking about current events can help keep dementia patients as sharp as they can be.

When it becomes time for a more intensive care plan, it is best to consult your healthcare provider to determine the next steps. There are a lot of ways you can help, so here are a few things to consider asking your doctor about:

  1. Communication

    What are the best ways to talk to your loved one? How can you support and stimulate them as things get more difficult?

  2. Hygiene and appearance

    Take some time to consider how dressing and grooming may add a familiar routine to the life of your loved one.

  3. Keeping calm and oriented

    Dementia brings a lot of frustrating changes to a person’s life, so ask your doctor how you can help keep things under control!

  4. Memory loss

    This is one of the most important things to keep track of as dementia progresses. Ask your doctor for additional ideas about how to keep your loved one sharp.

  5. Managing behavior and sleep issues

    A normal routine can quickly be thrown aside as symptoms progress, making sleep patterns difficult to uphold and positive behavior hard to maintain.

dementia-treatment-home

Are dementia patients better at home?

In-home care is a great option for many patients, and it is especially helpful for those in the early and middle stages of dementia, where some level of independence can still be maintained. 

By far the greatest value that in-home care can provide is the benefit of keeping your loved one at home for as long as possible. Many dementia care facilities, like assisted living facilities or memory care units, can be incredibly disorienting and bring an earlier onset of more severe symptoms. Familiar environments, like the home, provide comfort and security for your ailing loved one while also generating greater peace of mind for the entire family.

In-home care can still be maintained, even as early dementia progresses towards more moderate symptoms. Hiring an in-home caregiver can keep a high level of care while also lessening the burden on the family. 

Companies like Westchester Family Care that provide caregivers specifically for dementia patients usually offer a wide range of care options depending on the patient’s needs. Care levels range from basic assistance with tasks and chores like laundry and groceries, all the way up to live-in care for patients with more advanced symptoms and challenging behaviors.

Ask your doctor about the potential need for a caregiver and the positive difference they can make at home!

dementia-foster

Fostering independence for dementia patients

Promoting self-care and independence in dementia patients is a crucial part of boosting self-worth, especially in the early stages of the condition.

While not every in-home task is manageable by every patient, most caregivers and family members should recognize that there is still a lot their loved one can do for themselves. Maintaining independence and responsibility improves their quality of life and sense of self-reliance.

Here are several ideas that may cultivate a new level of independence in your patient or loved one’s life:

  1. Introduce helpful home safety improvements

    Adding safety elements to the home—brighter lighting, handrails, a shower chair, or larger text on clocks and other appliances—can greatly improve a senior’s ability to interact with the space around them. This fresh spin on a familiar environment can allow the patient to make better use of the space around them, effectively making the home safer for longer.

  2. Make getting dressed easier to handle

    Dementia can cause the loss of ability to perform once-familiar tasks, like dressing. This can often be very frustrating and embarrassing, so look for wardrobe options that make dressing easier. For example, velcro-fastened shoes or pants with elastic waistbands are much more manageable, even for seniors with limited dexterity.

  3. Establish a routine

    Establishing a routine for normal activities like bathing, eating, and sleeping can instill a renewed sense of purpose, that reduces anxiety in dementia patients. In a time when familiar things fade into obscurity, a regular schedule provides a framework where dementia patients can thrive.

  4. Write out schedules

    Similar to the last tip, maintaining a calendar for doctor’s appointments, caregiver visits, meal times, and more can keep a senior on top of their tasks. While there are a wide variety of methods to employ here, using a large, easy-to-read calendar is an effective way to have the schedule accessible in the home. If your loved one is still comfortable with technology, consider a digital calendar that uses alerts and sounds to better help notify them of their schedule.
    .

  5. Encourage exercise

    Getting up and out every day can promote better flexibility and increase muscle strength for seniors. While there’s no direct linkage between exercise and the reduction of dementia symptoms, an active lifestyle can promote the health and happiness of any senior, better equipping them to manage daily life events.

  6. Invite help around the house

    While a senior may not always be equipped to prepare a full meal or clean the whole house, performing small tasks in the company of others is not only a positive social experience but also helps build a better sense of independence.

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In-home Dementia Care Guide

Choosing in-home dementia care

home-care-vs-assisted-living

Living with dementia can affect every moment of a senior’s day. Everything from dressing and eating to social events and memory becomes more and more difficult as time goes on. 

It is okay to be frustrated. Everyone from family members and caregivers to the patients themselves will experience the heavy burden of this condition. Choosing the best care options for you will better ensure a higher quality of life no matter the progression of the disease.

In-home care is a valuable tool for treating dementia patients and is more than just help with laundry and transportation. Hiring an in-home caregiver brings new energy into the house that provides great companionship alongside the provided care.

Many seniors request the opportunity to “age in place,” receiving high-quality care in the comfort of their homes. 

This form of care comes with a wide range of benefits that can be tailored to the needs and desires of the individual. These include but are not limited to:

  • Assistance around the home, including meal preparation, medication reminders, light housekeeping, and laundry services.
  • Personalized one-on-one care, allowing for valuable personal relationships to be formed between the patient and the caregiver.
  • Customized care plans aimed at fulfilling the patient’s needs at any stage of dementia. 

Options can range from minor in-home assistance to fully integrated, live-in caregivers that allow the patient and their family to have full control over the hiring process and service level.

Another huge benefit of in-home care is that it provides a lower cost compared to assisted living facilities and more intensive memory care units. Since the intensity of in-home care is scaled to the needs of the patient, costs vary, but overall, in-home care is cheaper than moving directly to an assisted facility once minor dementia issues have begun. If you still have some lingering questions about the cost/benefits of in-home care as compared to an assisted living facility, check out this guide on how to make the right choice!

Westchester Family Care offers a wide range of in-home care services with caregivers specially trained to provide care for dementia patients. For more information on our in-home dementia care services, visit our service page here!

Dementia coaching

coaching-dementia

A dementia coach provides support services to the patient, their family, and other care providers. These caring professionals operate objectively—without undue personal attachment or emotional baggage—to help families navigate major, and often overwhelming, life changes. Think, “big picture person.” 

Dementia coaches bring focused expertise and patience in dealing with memory conditions like dementia and Alzheimer’s Disease. They help the patient’s family and caregivers effectively plan for the future while still recognizing life’s daily successes.

A dementia coach can provide a long list of services and are invaluable when it comes to discussions that require a delicate touch. Coaches can help in many ways, which include but are not limited to:

  • Minimizing symptoms through effective planning
  • Educating the family on memory diseases and conditions
  • Assessing the current care situation and making recommendations based on outcomes
  • Providing support and structure to all parties as they navigate the disease progression
  • Giving objective feedback and guidance for major decisions
  • Reducing patient, family, and caregiver stress
  • Coordinating care to maximize patient independence

Overall, the addition of a dementia coach brings a powerful objective force to a situation that is so difficult and personal, often helping make more effective and better-informed decisions.

Health and Nutrition

health-and-nutrition

Access to regular, nutritious meals can become a challenge for dementia and Alzheimer’s patients in the middle and late stages of the disease. Keeping up proper nutrition can be a huge help to the patient by keeping the body strong and healthy.

A proper nutrition plan can improve the behavioral condition of the patient and even help with weight loss. Here are some basic nutrition tips to help get you started:

  1. Create a varied and balanced diet: There are a lot of fun options to incorporate into your loved one’s diet, including fruits, vegetables, low-fat dairy, lean proteins, and whole grains!
  2. Cut your sodium intake: Too much sodium can affect blood pressure and cause dehydration. A large portion of people in the US consumes too much sodium through items like fast food and snacks. Consider cutting out high sodium foods, using less salt when you cook and trying some alternative spices!
  3. Limit cholesterol and highly saturated fats: Not all fats are equal, and too much of the wrong fats can be bad for the heart and body. Try going lighter on heavy fats like butter, shortening, and lard.

Adhering to a new diet can be difficult for many people, especially dementia patients. Consulting a caregiver and nutritional counselor could add a more professional and objective outlook on your patient’s health.

To learn more on the value of proper nutrition for dementia patients and the impact of nutritional counseling, check out this resource of Dementia Patient Care and Nutrition Training!

Self-care for the family caregiver

selfcare-family-caregiver

Whether the patient’s caregiver is a professional or a family member, like a spouse or child, the high level of stress associated with providing quality care can quickly drain anyone.

This exhaustion is often referred to as “compassion fatigue” or “caregiver burnout” and can lead to costly mistakes for both caregivers and their patients. Common symptoms of caregiver burnout include, but are not limited to:

  • Anxiety and depression
  • Abnormal weight loss or weight gain
  • Weakened immune system
  • Attention issues
  • Short-term memory loss

While some of these individual symptoms may be indicative of other issues, the combination of two or more can be a strong sign of caregiver burnout. To help combat this common issue, consider the following tips:

  1. Take breaks when you need them: It is okay to take time for yourself and your family. Focusing 100% on the patient—at the expense of the rest of the family—can cause additional and undue stress and should be talked about openly within the family.
  2. Seek out help: Whether it is assistance from another qualified caregiver, dementia support groups, financial/legal planning, or seeking out additional health care for yourself, it is important to recognize when you are worn out and treat your exhaustion appropriately. A little mental health goes a long way!
  3. Make a To-Do list: It may be time to practice what you preach. Similar to dementia patients, caregivers experiencing compassion fatigue may find it difficult to tackle their largest tasks. Break down your schedule into manageable pieces and celebrate the small victories when they come!
  4. Treat yourself!: If you can afford it, take some time off for a personal treat like a massage or a night out.

Compassion fatigue should be taken seriously and treated effectively. Dementia can be extremely tiring for everyone involved, so it is important to make sure every single person is taken care of and performing at their best!

To learn more on the value of proper nutrition for dementia patients and the impact of nutritional counseling, check out this resource of Dementia Patient Care and Nutrition Training!